Hi! I'm Joey.
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| Joey's 6th
brain surgery is on Tuesday, August 16th at 11:30a.m.
This is considered as another 'left hemispherectomy' and then some exploratory surgery. They really don't seem to know what is going on with the continued seizures, which are getting more severe. Most are lasting 2 ~ 3 minutes. They plan to take out a section of the left frontal lobe that I didn't know was still there, explore the basal ganglia area and also the chunk of brain tissue in the back that is suppose to be electrically disconnected already. They will determine whether he needs to have a shunt put in. The MRI showed some hydrocephalus. I am totally against shunts. They come with their own complications. Please keep him in your prayers and I will let you know how he does. Thanks in advance for your prayers. Please keep Joey in your prayers - Read about the surgical result in "A Note from Joey's Mom" |
For the Words to Joey's Song - click here
The first physical therapist to work with Joey, two days after the hemispherectomy at Children's, was Kendra Elmore. She fell in love with Joey and vice versa. She was out running and came up with this poem about Joey. The next day she came over and sang "Joey's Song" to him as his 2nd birthday present. It's incredible.
You Gave Me Courage - click here for Poem
See the poem Joey's mother wrote when in PICU. Sandy does not write poetry and this was her first. So many emotions can only be expressed this way.
For Washington Post Article - click here
By Bob Levey
Washington Post Staff Writer
For American Weekly Article - click here
(with Photos by Anne Doyle)
For Channel 9 WUSA Article - click here
See the interview & great video they did of Joey
| Joey's Scrapbook |
| He's 5 and the apple of our eye - see family photos - learn about his therapy sessions |
| Joey's Schedule |
| Joey is Poster Child for Children's Hospital - check his appearances |
| Fun for Kids |
| Print and Color - Discover your world |
| Help for Parents |
| There is a world of seizure and epilepsy information on the Internet - We've some helpful references listed here |
| Joey Lora Fund for Children |
| The "Joey Lora Fund" money goes to benefit the areas of the hospital that are responsible for Joey's success and the future successes of other children like him. |
| Home Page |
| Special Links here for Joey's Song / Joey's Poem / Washington Post Article on Joey |
| Joey's Guestbook |
| Please be sure to sign Joey's Guestbook!! |
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Joey and Mom Enjoying the Playground |
| Copyright 2003
- 2007 by Joey Lora Email Contact |
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