Joey Lora .com Logo Banner: Poster Child for Epilepsy

Photo: Joey Lora - Miracle Epilepsy and Hemispherectomy survivor - teaching us to love every day of his life!

Joey Lora's Guestbook had SO many signatures that he "Crashed The Program" in February 2005

Way to GO, Joey!!  :)

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Here is the Archive of those wonderful 2003 visitors who made it Happen!

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Date:
11 Apr 2003
Time:
12:59:20
Remote User:
Comments
Hey Joey, I just wanted to just you a line and send you a BIG HUG! Love, Jennifer Family Services CNMC


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Date:
11 Apr 2003
Time:
16:08:27
Remote User:
Comments
Hi Joey! My sister Dana just adores you! I am so glad that I have been able to get to know you myself! You are the cutest boy in the world! -Casey Becker


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Date:
11 Apr 2003
Time:
22:38:34
Remote User:
Comments
Joey rocks! Your friend Kevin from AU Danceathon


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Date:
12 Apr 2003
Time:
02:35:04
Remote User:
Comments
Hey Joey-great website. I will have to revisit it again tomorrow w/my daughter. You are too cute! The pictures are nice but I really like seeing you in person on 4green. You rock!!!! Emily


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Date:
13 Apr 2003
Time:
18:03:40
Remote User:
Comments
Hi Joey!! Aunt Linda and Aunt Irene sure think you are one special little boy and are proud to have you for our nephew. We enjoy your website and pkan to share it with our friends.


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Date:
18 Apr 2003
Time:
01:58:43
Remote User:
Comments
Greetings from WV, Joey!! Come slide down the mountains with me :) Love, me & Bud


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Date:
18 Apr 2003
Time:
09:58:54
Remote User:
Comments
You are my Sunshine... I love you so much. Aunt Sharon


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Date:
19 Apr 2003
Time:
16:03:16
Remote User:
Comments
Hello Joey, my name is Pat and I live in Nottinghamshire (where Robin Hood came from) in the United Kingdom. Fran told me about this website and I had to come and have a look. She done a great job hasn't she! You and your family have been through some very tough times and I think you're very brave and courageous..... and do you know what else...... I think you're very handsome and you have a wonderful smile!


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Date:
21 Apr 2003
Time:
16:22:05
Remote User:
Comments
Hola Senor! Come by and visit. This site is fun, becasue on the days when you are not at CNMC I can visit you! Hasta la vista BABY!


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Date:
21 Apr 2003
Time:
17:26:03
Remote User:
Comments
Hi Joey, You have a great website. We heard you are going to be on TV and we'll be looking for you. Laurie (friend of Dana)


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Date:
23 Apr 2003
Time:
12:26:22
Remote User:
Comments
Hi Joey! I just love your web site! You and your Mom are so special to share your story with everyone. You are making the world a brighter place, and giving hope to many others. I am proud to know and love you both! Lynda


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Date:
23 Apr 2003
Time:
12:27:07
Remote User:
Comments
Hi Joey! I just love your web site! You and your Mom are so special to share your story with everyone. You are making the world a brighter place, and giving hope to many others. I am proud to know and love you both! Lynda


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Date:
24 Apr 2003
Time:
00:28:44
Remote User:
Comments
Hi Joey: I have been keeping up with you through your Aunt Linda, over the past few years. We use to work together at GMAC. You are a very remarkable boy who has been very courageous through all your times in the hospital. You are a real inspiration and delight to all that know you and to all the other children with epilepsy. Stay cheerful and keep on smiling! Carolyn Parsons Delmar, DE.


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Date:
24 Apr 2003
Time:
03:10:05
Remote User:
Comments
Hi Joey, My name is Carole, Your Aunt Irene's neice from Ireland. Your Aunt Linda told me about your website, so i logged on to take a look. It is great that you and your Mom are sharing a part of your life with the world. You are a very brave boy and you give inspiration to everyone. I hope some day to come and visit and give you a huge hug!! Lots of Love. Slan leat, Carole.


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Date:
24 Apr 2003
Time:
07:06:58
Remote User:
Comments
Hi Joey This page is really great. Can't wait for my granddaughter Annie and my little friend Allison to play on your page. Denise Moss


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Date:
24 Apr 2003
Time:
07:21:35
Remote User:
Comments


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Date:
24 Apr 2003
Time:
07:25:38
Remote User:
Comments
Hi Joey, What a great website. I am so proud of you and how you have grown into such an amazing little boy. You are an inspiration to all of us. Thank you Aunt Linda for sending me this website. I will check back for updates. Karin


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Date:
24 Apr 2003
Time:
08:03:53
Remote User:
Comments
Hi Joey, You are a very special boy, blessed to be part of such a special family. Love you lots! Michele Tarr


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Date:
24 Apr 2003
Time:
10:37:40
Remote User:
Comments
Hi Joey! What an amazing young man you are! You are always in my prayers! Hope you are enjoying school, feeling good, and having lots of fun! Miss Ronnie Feldmann (a friend of your Aunt Linda)


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Date:
24 Apr 2003
Time:
10:38:30
Remote User:
Comments
Hi, Joey! We miss seeing you at GMAC. Have your Aunt Linda bring you by more often!! Jennifer Horbey


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Date:
24 Apr 2003
Time:
11:33:14
Remote User:
Comments
Hello Mr. Personality. You don't know me but I am a friend of your Aunt Linda. I live in Salisbury, Maryland, (35 minutes from Ocean City). If you ever get down to the ocean, I would love to meet you. You are truly amazing. Love, Karen Parker


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Date:
24 Apr 2003
Time:
17:25:10
Remote User:
Comments
Hello Joey, The website is awesome!!! I am so proud of you and you are such a always smiling. Hope your Aunt Linda and you will visit us at GMAC this summer. Keep smiling and stay strong. Keep the faith and remember GOD loves you!!!. Claudia Savage


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Date:
24 Apr 2003
Time:
17:29:20
Remote User:
Comments
Hello Joey, The website is awesome!!! I am so proud of you and you are amazing. Continue to keep a positive attitude. Hope your Aunt Linda and you will visit us at GMAC this summer. Keep smiling and stay strong. Keep the faith and remember GOD loves you!!!. Claudia Savage


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Date:
24 Apr 2003
Time:
17:29:40
Remote User:
Comments
Hello Joey, The website is awesome!!! I am so proud of you and you are amazing. Continue to keep a positive attitude. Hope your Aunt Linda and you will visit us at GMAC this summer. Keep smiling and stay strong. Keep the faith and remember GOD loves you!!!. Claudia Savage


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Date:
24 Apr 2003
Time:
18:29:03
Remote User:
Comments
HI Joey, It was so great meeting you at the American University Dance Marathon at the beginning of April. From one patient to another, KEEP SMILING!! Cheryl Ebbinghaus


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Date:
24 Apr 2003
Time:
21:13:50
Remote User:
Comments
Hola José Capítan! Muchos besos, Keekeeroni ;)


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Date:
24 Apr 2003
Time:
23:01:58
Remote User:
Comments
Aloha Joey! Wow! It sure is great to see your webpage! I'm glad to see that things are going well for you~ John and Mark said, "Hello!--How's our cool guy?" They can't wait to see you again and do some dancing! You are truly an inspiration to all of us! Love you! Teri, John and Mark Price :o)


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Date:
25 Apr 2003
Time:
07:23:29
Remote User:
Comments
HI JOEY I HOPE TODAY IS A FUN DAY. GOD BLESS YOU MARIA KILNER


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Date:
25 Apr 2003
Time:
08:50:13
Remote User:
Comments
I love you Joey! I want to see some pictures of Camp Great Rock, and Jackson Road Elementary School, and of ME!!! Love, Susan


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Date:
25 Apr 2003
Time:
10:29:53
Remote User:
Comments
Linda Chaney and Karen Gustafson are long time friends of mine and they both love you and are proud of your courage and attitude. I hope to meet you some day as you must be a real special young man .I love the picture of you and your Mom on the slide- you both have great smiles. Yours truly Bill Lovejoy


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Date:
25 Apr 2003
Time:
13:35:46
Remote User:
Comments
Hello Joey I am 6 it must be nice to be a star I am inside I had the surgucally to in texas


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Date:
25 Apr 2003
Time:
14:05:22
Remote User:
Comments
Joey, You have stolen the hearts of so many of us here at Children's. You are very special and you're LOVED VERY MUCH!!! Love, Lisa


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Date:
25 Apr 2003
Time:
16:16:00
Remote User:
Comments
Joey, you are a SUPER


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Date:
25 Apr 2003
Time:
16:21:09
Remote User:
Comments
Joey you are a Super kid, with VERY SUPER Parents, keep up the great success.....Great web page, Sandy We Love you all!!!!!! Bonnie and her family


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Date:
26 Apr 2003
Time:
10:57:50
Remote User:
Comments
Hi Joey: Love your website! My name is Carol and I live in southern Florida - where it is always warm and sunny. I am a friend of your Aunt Linda and have heard so much about you ever since the day you were born. You are such a cute and brave little boy, with a big smile. Glad to see you are doing well. Keep smiling that wonderful smile :-) Carol Strickland


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Date:
26 Apr 2003
Time:
13:06:27
Remote User:
Comments
Hi Joey, Hope to se you at Camp Great Rock, Love, Juls


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Date:
26 Apr 2003
Time:
14:39:01
Remote User:
Comments
Hi Joey, I am a 68 old grandmom of two grandchilden and mother of one. You are a very adorable young man. June K


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Date:
26 Apr 2003
Time:
14:44:12
Remote User:
Comments
I just wrote you a e-mail telling you I was a 68 year grand mother of two and mother of one. I want you to know this also I am retired from GMAC in Salisbury Md and I now live in Florida. Good Luck June K


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Date:
27 Apr 2003
Time:
15:09:31
Remote User:
Comments
Hi Joey: Just wanted to say hi to you and Mom and the rest of the family. I know you are keeping everyone happy with your lovable personality. Lots of love to all, Theresa Raymer


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Date:
27 Apr 2003
Time:
17:16:07
Remote User:
Comments
Hey Joey, Remember your walking friend! I don't see enough of your smile here at St. John's! Your website is great! Keep pushing hard my little friend! How Much God loves you and so do we! Sr. Roberta


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Date:
28 Apr 2003
Time:
09:07:13
Remote User:
Comments
Hi Joey, Just a short message from Scottsdale, AZ. I am so glad to see all the progress you have made and pray that you will continue to do so. It is amazing to see how far you have come and how you have maintained such a wonderful and loving attitude during everything you have been through. It sure is good to see you when I come back to the East Coast to visit. I am planning another trip in September and will let your Aunt Linda know the details so hopefully I can see you again then. In the meantime keep up the good work and enjoy all that you do. Love, Elaine Heineman


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Date:
28 Apr 2003
Time:
09:13:02
Remote User:
Comments
Dear Joey, Glad to hear all about you. Keep up the good work. love, Avis and Greg


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Date:
28 Apr 2003
Time:
10:22:27
Remote User:
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Date:
28 Apr 2003
Time:
10:27:01
Remote User:
Comments
Hi, Joey. It was so wonderful to meet you at the CFC Rally at the Department of Justice. You and your family are truly and inspiration. I can really relate, since my son was at Children,s in the Blue Nursery fro the first five months of his life. He too has had brain surgery twice. However, he has since graduated from High School, and now participates in a day program for individuals with both physical and mental disabilities. Thanks for sharing your story. Zephyr Fraser


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Date:
29 Apr 2003
Time:
17:55:21
Remote User:
Comments
Hi Joey, My name is Sue Baltimore and I'm a friend of your aunt Linda and Irene. They have been keeping me up to date on your progress and by the looks of this web site and the pictures of you, you sure are showing everybody what a handsome young man you've become. Hope everything goes well for you and I'll be stopping back to your web site to see how your doing. Later Joey -- Love SueB


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Date:
30 Apr 2003
Time:
08:10:26
Remote User:
Comments
Hi Joey, Your Aunts Linda & Irene have told us all here in Ireland so much about you. You are such a brave boy. We think that you are doing amazingly well and are all very proud of you. Congratulations on being Poster Child for Children's Hospital, they were lucky to get such a good looking chap to be their star! Say hi to your Mom Dad and family for us. Take care, Audrey & Shay Mahon


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Date:
30 Apr 2003
Time:
10:52:22
Remote User:
Comments
Hi Joey! My husband, Mike, met you at the airport today on your way to be on the John Walsh show. He thought you were adorable and really brave. He called me at work right away to tell me about you. We have a boy, Josh, who will be 4 years old in a few weeks and a little girl, Jordan - 7 months. You are an inspiration to all boys and girls. Keep up the good work, best of luck to you and have fun with your family and friends! You are very special and your family is to be commended for their love, devotion and support of you and other children like you! Sincerely, Lisa Patterson lisa.patterson@medstar.net


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Date:
30 Apr 2003
Time:
14:03:56
Remote User:
Comments
Jo Jo, hope you remember me, i saw you last at your Auntie Lindas' home..we were'Bubble-gum' kissing,do you remember?..!! You are growing up to be quite a handsome young man and OH MY those bubble gum kisses certainly were the best!!..hope to see you soon or maybe your grandmom can bring you to see me..take care sweetie pie..darlene crutchfield


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Date:
01 May 2003
Time:
12:44:43
Remote User:
Comments
Hi Sweetheart---You sure are handsome in your suit!!I hope you are having fun playing with your brother and sisters (you can be the boss, okay?) and I bet you are wearing your grandma out, but that's okay, cuz she and everyone who knows you loves you BUNCHES & BUNCHES!!!!!!!!!!! Make sure you tell Auntie Linda & Auntie Irene to be good girls. I hope you like school, honey. You are a brave little guy and we are proud that we have you for our special little friend!!!!!!!! Love you bunches, Policeman John, Nancy & Johnny (Maybe you can call Policeman John and he can show you the police station, that would be cool, huh?)


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Date:
02 May 2003
Time:
02:13:16
Remote User:
Comments
Hi Sandy & Joey, What a wonderful site you have here. I wish all of you the very best & Joey keep on smiling ! Marie(Herrman )Steele


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Date:
02 May 2003
Time:
06:43:11
Remote User:
Comments
Hi Joey-- You're a star! How many people do you know who can claim their own website. Thanks for the inspiration you provide to all of us. love, Anne Hummer and family


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Date:
02 May 2003
Time:
10:36:40
Remote User:
Comments
Hi Joey, I'm a friend of your Aunt Linda's, we worked together at GMAC and still work together at LAB. I saw you last at her house when you were dancing (remember shaking your "booty"?)and singing your song. You are such a special boy and there are so many wonderful things waiting for you out there. I can't wait to see how your life turns out !!! Shelia Gonnella


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Date:
02 May 2003
Time:
13:35:38
Remote User:
Comments
Hi Joey It's Annie, Mary's Mom. I just love all your pictures and your web site. You are getting so big and you grow cuter by the minute. I know you are suprising a lot of people by how well you have been doing. You are a great inspiration to all of us. You keep smiling that wonderful smile and be sure and kiss your Mom for all that she does. Love you Lots and Always, Annie ( your bud, Mary's Mom)


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Date:
03 May 2003
Time:
20:27:44
Remote User:
Comments
Hi Joey, I am a friend of Teri Price, who is a friend of your mother and father. I met you a few months ago at a party at Mrs. Price's house. I enjoyed visiting your website and look forward to seeing you on the John Walsh show. Much love and luck to you and your family. Gayle Gepert :)


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Date:
04 May 2003
Time:
12:04:10
Remote User:
Comments
Hi Joey it's Andrea, Your big sister. I love you!


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Date:
04 May 2003
Time:
12:30:54
Remote User:
Comments
Hola Jose Capitan! It's Andrea! I love you baby! CUTIE CUTIE! Love, Andrea(your big sister) P.S: Your such a sweetheart!!!!!!!!!!!!!!!!!! I LOVE YOU BABY BOY!!!!


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Date:
04 May 2003
Time:
16:35:39
Remote User:
Comments
Sandy---I love it. It is a great web site. I can't count the times I have used Joey as an example for our parents on 4 Green. We love you all Janet Krauss


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Date:
05 May 2003
Time:
07:41:36
Remote User:
Comments
Hi,Joey.Loved your website, we are thinking and praying for you.Say hi! to your mum and nan, Irene,Linda lots of love william and phil purcell (Ireland)


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Date:
05 May 2003
Time:
08:22:28
Remote User:
Comments
Hey Joey, keep up the great attitude. A positive outlook will do wonders.


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Date:
05 May 2003
Time:
13:11:20
Remote User:
Comments
Hey Joey, this is great . Keep working hard. Love , the Deffinbaugh's


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Date:
05 May 2003
Time:
13:13:02
Remote User:
Comments
Hi, Joey Someone sent me email on you and I just want to say we are praying for ya! Hang in there little buddy God is on the case. God Bless you & Family Jeff W.


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Date:
06 May 2003
Time:
12:04:18
Remote User:
Comments
HI JOEY MY NAME IS VINCE, I SAW THE SHOW TODAY! YOU WERE GREAT! GOD BLESS YOU, AND ALL OF THE OTHER CHILDREN AND FAMILY'S WHO ARE INVOLVED!! JOEY I ALSO MUST SAY GOD BLESS TO ALL OF THE MEDICAL HELP THAT CONTINUES FOR ALL OF JOEY'S NEEDS!! I AM SO BLESSED WITH THREE YOUNG HEALTHY BOYS . I HAVE STEPHEN WHO IS 20 YRS. LARRY IS 8 YRS., AND DYLAN WHO IS 6 YRS.,OLD. I WISH THEY ALL WOULD OF BEEN HOME THIS A.M. TO SEE THE SHOW AND ESPECIALY YOU JOEY!!!!! WE LIVE IN WATERFORD, MICH. IF IT IS EVER POSSABLE AND YOU ARE NEAR OR IN MICH. I'D LOVE TO HAVE MY CHILDREN AND I TO MEET YOU,IF EVEN FOR A MIN. TODAY WHEN MY KIDS GET HOME FROM SCHOOL, THEY WILL MEET YOU ON YOUR HOME PAGE.YOUR A SPECIAL BOY! I MYSELF HAVE SOME GROWING CHALANGES.I REALY AM INSPIRED BY YOUR STORY, AND HOPE AND PRAY FOR GOD TO HEAL ALL OF THE CHILDREN OF THE WORLD!!!!!THANK OU JOEY!!WE WILL TALK TO YOU AGAIN SOON.VINIE BOOMBA@AOL.COM


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Date:
06 May 2003
Time:
13:14:42
Remote User:
Comments
Hi Joey I would love to see you again. I meet you last year at VSE. I as so glad to see you doing so well. Mary Wantrobski


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Date:
06 May 2003
Time:
13:27:55
Remote User:
Comments
Hi Joey. Never forget that you are always in our thoughts. We love ya lots!!! --Jennifer, Curtis & Coby


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Date:
06 May 2003
Time:
14:47:26
Remote User:
Comments
Hi Joey, I work with your Aunt Linda here at LAB. I saw you on TV this morning and thought you did a great job. Keep up the good work and remember to keep dancing. Steve May


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Date:
07 May 2003
Time:
07:31:42
Remote User:
Comments
Hi Joey, glad to see you are doing well and your website is wonderful. Love the song and will keep you in my prayers. Stay strong! Come visit us again at VSE! Lisa Bishop


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Date:
07 May 2003
Time:
11:43:31
Remote User:
Comments
Hi Joey, I saw you on the John Walsh show yesterday. You really are "Mr. Personality." Keep doing well and Happy Mother's Day to your mother. Mary Bukowski in Birmingham, AL


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Date:
08 May 2003
Time:
00:43:27
Remote User:
Comments
hello again joey, my boys larry and dylan wiil be here friday to meet you and i wiil finish telling them about you and your mom. they are looking forward to seeing your home page and pictures.god bless! wee will speaking to you all again friday.thinking of you often ,and thankyou for shareing your story, it's realy brought my spirts up !!! vinieboomba


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Date:
08 May 2003
Time:
00:43:27
Remote User:
Comments
hello again joey, my boys larry and dylan wiil be here friday to meet you and i wiil finish telling them about you and your mom. they are looking forward to seeing your home page and pictures.god bless! wee will speaking to you all again friday.thinking of you often ,and thankyou for shareing your story, it's realy brought my spirts up !!! vinieboomba


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Date:
08 May 2003
Time:
08:03:50
Remote User:
Comments
Hi Joey!! How's my good-looking little boy? You do real well in school and I'm proud of you. We always have fun when I take care of you. I miss seeing you every day. Lots of love, Nan-Nan


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Date:
14 May 2003
Time:
12:10:03
Remote User:
Comments
Hi Joey! Hope u are having a good time at what ever your doing! Katie


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Date:
15 May 2003
Time:
11:29:35
Remote User:
Comments
Hi, Joey, I know you just left MRI but we couldn't wait to say hello to you. Great to see you. Love Terry and Renee


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Date:
16 May 2003
Time:
09:47:04
Remote User:
Comments
Dear Joey, You truly are a special little guy - with an absoulutely amazing family. I am so happy to see and hear of your continued progress - you are a blessed young man. Our thoughts and prayers are always with you. God Bless YOU, and your wonderful family ...... Love you, Lola


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Date:
16 May 2003
Time:
13:52:54
Remote User:
Comments
Hi Joey! We are proud of you here at Children's. Thanks for brightening up our days. God bless you always. Kriss Board Coordinator, Resource Management CNMC


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Date:
16 May 2003
Time:
15:43:27
Remote User:
Comments
May 16, 2003 God Blessed me yesterday because I met you for the first time. My husband works in the kitchen at Children's and he had told me a lot of wonder things about you. What a joy to meet you and find out that they are all so very true. I Pray to our Heavenly Father that He will continue to Bless you and your family. Esther DePugh


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Date:
17 May 2003
Time:
14:31:16
Remote User:
Comments
Hi Joey! We enjoyed meeting you at Martin's Food in Hagerstown, Md. May 17th during our radio remote broadcast. You really know how to hit that golf ball! We think you are a real winner and a real doll! Give your wonderful Mom a BIG Hug. Our stations are in Greencastle, Pa. Visit us if you are ever in the neighborhood. Love and best wishes, A J Silver/Dottie Hedglin WWMD-FM MAGIC 101.5


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Date:
20 May 2003
Time:
14:50:49
Remote User:
Comments
Hi Joey, You have grown quite a bit since I first met you in Sept. 2001 and you are becomming a very handsome young man. Thank you for introducting me to your Website. I will send a little note every now and then. Love you Ms. Rhonda, AERC, Suite 1300


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Date:
29 May 2003
Time:
22:44:01
Remote User:
Comments
Hi to Joey


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Date:
31 May 2003
Time:
09:56:33
Remote User:
Comments
Hey Jo-Jo, it's Nay-Nay, just wanted to say hello. I happened to turn the television on and to my surprise guess who was on????? It was you. My heart is overwhelmed when I see how far you have come. Keep up the good work. I thank God for the miracle of YOU!!!! I LOVE YOU!


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Date:
08 Jun 2003
Time:
19:18:38
Remote User:
Comments
Hello Joey, :) I was so happy to have met you and i love your web site! I hope that you are feeling better and you continue on being such a little star! It was a pleasure having met you, i was glad that i was working that night....you never know when you get to take care of such stars!!!! Best Wishes-- Erica Boehme wwsony@hotmail.com Urgent Care, Kensington, MD


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Date:
02 Jul 2003
Time:
14:12:38
Remote User:
Comments
Hi Joey! My name is Elizabeth. I met you last March at Georgetown's Dance Marathon. Next year I will be the Family Relations Chair for Hoyathon and I hope to plan fun events for you and your family. I hope you will join us again for Hoyathon 2004. You are a great little boy.


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Date:
26 Jul 2003
Time:
07:24:44
Remote User:
Comments
Hey Joey, Do well my friend. I know that you'll make an amazing impact in this world. Mohammed


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Date:
19 Aug 2003
Time:
11:25:33
Remote User:
Comments
Aloha Joey, You are such an adorable child. I wish for you the best in all your endeavors! Keep up the great work! With Warmest Aloha, Sue "Rainbowskies"


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Date:
01 Sep 2003
Time:
15:18:55
Remote User:
Comments
Hi Joey my husband Don and I my name is Dottie saw u on tv this morning Sept 1st and we think you are the sweetest boy. You look alot like our grandson Danny. We hope you continue to gain on the seizures and that soon there won't be anymore. Our grandson Danny is 9 yrs old he was born with celebry palsy and he has made great strides. He rides a two wheel bike and has been since he was 4 like you.He also doesn't have use of one hand but he opens it with his good hand and wraps it around the handle bar of his two wheel bike and off he goes. So glad u got a nice bike with your name on the plate I hope it makes u happy. You seem like a nice boy give your mom a kiss and tell her thank you for all she does to help you be the best that u can be and stay strong and know that you and your family are in our thoughts and prayers Love Dottie


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Date:
03 Sep 2003
Time:
11:44:33
Remote User:
Comments
Hi Joey, glad to hear you are doing well, I have a grandson,named Alex, Alex is 5-1/2 yrs old and also has epilepsy. He has had 70% of the the left side of his brain removed, however he is still having nasty seizures. The doctors want to do more surgery.


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Date:
05 Sep 2003
Time:
16:13:04
Remote User:
Comments
Joey, I have a little boy who is 19 months who also has right-sided hemi-plegia. He wears a splint on his hand just like you. I heard of your story from my sister who watched the John Walsh show. I would love to hear more about your progress and how you woe all the ladies. My son's name is Gerrit and he to is also a big ham that loves attention and to make "Cheese" at all the cute girls. His story is a little different than yours. He had a massive stroke when he was still in my tummy. We didn't know until he was nine minths also. He started having seizures and was put on steroids to try and stop the sezure activity. He doesn't walk or even bear any weight on his legs yet but he is working on it daily with all of his therapists and teachers. It is hearing stories like yours that helps me continue my weekly routine of therapy, brushing, and worry just to know that he will walk someday! Thank you! Mrs. Dixon


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Date:
06 Sep 2003
Time:
08:57:32
Remote User:
Comments
Hello again Joey. I wanted to leave my e-mail address for you and your mother. I would really like to talk with her and learn more about your story. I wrote yesterday about my 19 month old son Gerrit, but I forgot to leave my address. It is dixon1998@sbcglobal.com Hope to hear from you soon!!


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Date:
09 Sep 2003
Time:
20:40:04
Remote User:
Comments
Hi kiddo your a very sweet angle and i am so proud of you the fight you have indeared has been big but your a little tigger that won the war i am so proud of you and the lord has his eyes on you to keep you safe your a true hero and a tough cookie we love you and have you in our prayers always


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Date:
06 Oct 2003
Time:
13:25:29
Remote User:
Comments
Joey, It was wonderful visiting with you at the William's party Saturday night. You were most definitely the "joy of the party". I love your terrific website and it must be a tremendous help for other children and their families. So happy to know you. Love, Margaret Saffell


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Date:
07 Oct 2003
Time:
13:12:59
Remote User:
Comments
Hey Joey, what's up? This is the Friendship Seventh-Day Adventist school in Linthicum, Maryland. We just wanted to know how you are doing, and let you know that we're praying for you. From all of the nineteen sudents, Bye


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Date:
07 Oct 2003
Time:
21:07:23
Remote User:
Comments
HI Joey! its Miss Daisy from school! Mrs. Munzo gave me your card...you were just about the cutest thing when i first came into the classroom for my internship..."look at my picture!" was the first thing you said to me. as you held up a horse that you painted blue. ill always remember that. thank you. ^_^!


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Date:
08 Oct 2003
Time:
18:44:01
Remote User:
Comments
Hi Joey, My name is Barbara and I'm Kevin Carlberg's mom. He has told me so much about you and he says that you are one of his best buddies. You and Kevin are such big, strong boys!! I'm sure that your mom is as proud of you as I am of Kevin. Maybe one day we'll meet. I would really like that. Best wishes, health and much love, Barbara Carlberg


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Date:
19 Oct 2003
Time:
14:42:53
Remote User:
Comments
Hi Joey; Your mom tells me when Isee her what a great yougn man you are and Ijust wanted to say HELLO.. I will ask my brother,Father Dan Leary of St. Martins Parish in Gaithersburg to say a special MASS for you in hopes that u will always be happy,healthy and a wonderful young man....Tell your Mom and Dad this note came from a friend at the North Gate @Leisure World....GOD BLESS YOU" "MIKEY" the Security Guard


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Date:
22 Oct 2003
Time:
10:31:05
Remote User:
Comments
Hey Joey it's peirce Remember me?? I'm from saint john the evangelist school


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Date:
22 Oct 2003
Time:
10:31:06
Remote User:
Comments
Hey Joey it's peirce Remember me?? I'm from saint john the evangelist school


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Date:
23 Oct 2003
Time:
13:20:38
Remote User:
Comments
Hey BIGTIME it is your main man joe from the cafe just checking you out Buddy.GOD BLESS YOU. JOE


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Date:
26 Oct 2003
Time:
18:50:56
Remote User:
Comments
Hi Joey, Happy 5th Birthday! We were happy to be at your birthday party. We had a really good time. We hope to see you again real soon. Love, Matt & Chris Halkos


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Date:
27 Oct 2003
Time:
10:11:39
Remote User:
Comments
Hi Joey---Your 5th birthday party was wonderful!!! You are a very special little boy. It brought tears to our eyes to have you sitting on Kendra's lap while she sang Joey's Song to you. You're quite a little dancer!! Keep up the good work with school and therapy. We love you...Aunt Linda and Aunt Irene


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Date:
27 Oct 2003
Time:
11:00:13
Remote User:
Comments
Hi Joey! We loved your birthday party-we can't wait to hear you sing more songs! Thanks for letting us in on all the fun! Love, Matt and Terri Latham (Matthew's sister and bro-in law).


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Date:
30 Oct 2003
Time:
13:14:53
Remote User:
Comments
Hi Joey, I love the web site. I love your baby pictures. See you around the halls in school. Martha A. Jimenez


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Date:
04 Nov 2003
Time:
13:51:00
Remote User:
Comments
Hey Joey! Its Andrea (ur big sis!) Lexi says hi. Luv ya babe ~Andrea


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Date:
05 Nov 2003
Time:
19:39:01
Remote User:
Comments
Hi, Gucci Boy. Your party was something wonderful. To have so many people there that truely love you. You were a great host and entertained everyone and paid attention to each of us. It was such a blessed day and you are truely a blessing for me. You'll aways be my Sunshine. Love, Aunt Sharon


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Date:
14 Nov 2003
Time:
21:44:17
Remote User:
Comments
Hi Joey it's Anthony I just decided to check out your website. It is sooooo cool. Bye.


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Date:
20 Nov 2003
Time:
18:14:36
Remote User:
Comments
Hey Joey. It's Anthony's friend, Chris. It's a cool website and you rule.


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Date:
21 Nov 2003
Time:
18:05:23
Remote User:
Comments
Hey Joey! Thanks for giving me your card with this website address at the hospital today. It's great! The pictures are cool, the song is fun....I wish I had a website. Your the best. I'll see you around. Dr. Andrew (dentist)


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Date:
22 Nov 2003
Time:
12:43:57
Remote User:
Comments
Hey Joey........its Anthony


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Date:
22 Nov 2003
Time:
17:02:15
Remote User:
Comments
Hi Joey! This is your friend, Mrs. B (Bahra) and I wanted to tell you that you are a wonderful little buddy with a big heart!!! You're a very loving kid, and I shall always keep you in my heart. I'm so glad that I have substituted for Ms. Anderson at Forest Knolls Elementary School, because I got to meet you!! God bless you!


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Date:
24 Nov 2003
Time:
14:50:24
Remote User:
Comments
Hi Joey! I'm the person who is reserving your upcoming trip to Punta Cana. I hope you have a great time! I love your website! Wendy Epstein (with help from husband David Epstein) All Ways Travel Bethesda, MD


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Date:
25 Nov 2003
Time:
15:40:28
Remote User:
Comments
Hey "BIG TIME" it's your buddy Joe from the cafe. Hey Sandy say HI to your mom for me and I hope you and your family have a "BLESSED THANKGIVING" GOD BLESS. JOE


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Date:
26 Nov 2003
Time:
20:16:01
Remote User:
Comments
Sup Joey-Anthony


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Date:
08 Dec 2003
Time:
16:24:47
Remote User:
Comments
Dear Joey, What's up Baby? Thank you for your Mr. Personality Card. I will post it in PICU for everyone to see. Love, Kathy RRT CNMC


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Date:
08 Dec 2003
Time:
17:09:00
Remote User:
Comments
Hi Joey,I have only seen you one time and that was in the hallway of CNMC you were with your Mommy and you told us that you where Mr.Personality,you are a Beautiful and Blessed little MAN you give me courage to go on!!


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Date:
15 Dec 2003
Time:
20:23:03
Remote User:
Comments
Hi everyone! It's Joey with his older brother Anthony


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Date:
19 Dec 2003
Time:
11:20:37
Remote User:
Comments
Hi Joey, How are you doing these days? Alicia from New Boston, NH


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Date:
29 Dec 2003
Time:
21:07:03
Remote User:
Comments
Hi, Joey! I met you when I applied for a job at Children's Hospital. I didn't get the job, but I'm happy to have had the chance to meet you. You're a true inspiration! I wish all the best for your future. Your friend, Patti


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Date:
31 Dec 2003
Time:
07:41:00
Remote User:
Comments
Hello Joey, I dont know if you remember me or not, my name is Doreen and I was one of your flight attendents on your return trip from Cancun over the x-mas holiday, I just want you to know that you are an inspiration , not only to other children, but to all people My son who is 25 years old was recently diagnosed with cancer, is now recovering from his surgery and radiation treatments,You have touched my heart in so many ways. You take good care little buddy. Doreen Adams ( Pace Airlines)


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Joey's Scrapbook
He's 5 and the apple of our eye - see family photos - learn about his therapy sessions

See Joey is New York!!!

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Print and Color - Discover your world
Help for Parents
There is a world of seizure and epilepsy information on the Internet - We've some helpful references listed here
Joey Lora Fund for Children
The "Joey Lora Fund" money goes to benefit the areas of the hospital that are responsible for Joey's success and the future successes of other children like him.
Home Page
Special Links here for Joey's Song / Joey's Poem / Washington Post Article on Joey
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Joey and Mom Enjoying the Playground

 
 
 
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