Joey Lora .com 

Research References for Parents

If you have found a great resource - let us know!  Email us  for possible inclusion of your link.

Special Link for that wonderful Children's Hospital:
http://www.cnmc.org/ 

http://www.biamd.org
This is the brain injury association of Maryland's website. It has lots of info and resources.

Evaluation of the Child with the First Seizure
http://www.baylorcme.org/seizure/pres_pres.html

Discussion Forum and chat room, lots of info
Epilepsy Foundation of America
http://www.efa.org

Mayo Clinic http://www.mayohealth.org/mayo/9612/htm/epilepsy.htm

Important to visit other countries to see what new drugs and treatments there are
British Epilepsy Association
http://www.epilepsy.org.uk

Epilepsy Ontario http://epilepsyontario.org

Epilepsy International http://www.epilepsy-international.com

Stanford University http://www.stanford.edu/group/ketodiet/FAQ.html
 
Citizens United for Research in Epilepsy
http://www.cureepilepsy.org/epilepsy-news/index.html

For New Yorkers:
http://www.epilepsyinstitute.org/institute/index.htm

And for some good news:
http://yourmedicalsource.com/library/epilepsy/EPI_outlook.html

Brainland
http://www.brainland.com/indiv_news.cfm?ID=93

EPILEPSY FOUNDATION OF VICTORIA, AUSTRALIA
http://www.nevdgp.org.au/geninf/epilepsyf/info/seizure.html

Braintalk Communities - Discussion Forum
http://neuro-mancer.mgh.harvard.edu/cgi-bin/Ultimate.cgi?action=intro&BypassCookie=true

The Neurology and Neurosurgery Forum
http://www.medhelp.org/forums/Neuro/wwwboard.html

Published Research on Vitamin E, Manganese, and Taurine in Epilepsy
http://www.healingwithnutrition.com/edisease/epilepsy/vitamins.html
http://www.gnc.com/health_notes/Concern/Epilepsy.htm#Introductory

Epilepsy Action (UK)
http://www.epilepsy.org.uk/info/syndfrm.html

The National Society for Epilepsy (UK)
http://www.epilepsynse.org.uk/pages/info/leaflets/learning.cfm

Medical Genetics
http://medgen.genetics.utah.edu/index.html

MedlinePlus
http://www.nlm.nih.gov/medlineplus/epilepsy.html

Epilepsy in Young Children
http://www.medicine.uiowa.edu/uhs/epilepsy/index.html

Clinical Trials
http://clinicaltrials.gov/search/term=Epilepsy

Kids Health
http://www.kidshealth.org/index.html

Contemporary Pediatrics
http://www.contpeds.com/be_core/k/index.jsp

Ask NOAH About: Neurological and Neuromuscular Disorders
http://www.noah-health.org/english/illness/neuro/neuropg.html#A

Neurology & Neurosurgery MedPulse®
www.medscape.com/neurologyhome

Other important tools:
You must join these, free

www.docguide.com
Medscape from
www.webmd.com
http://www.nytimes.com/

 

 
Joey's Scrapbook
He's 5 and the apple of our eye - see family photos - learn about his therapy sessions

See Joey is New York!!!

Joey's Schedule
Joey is Poster Child for Children's Hospital - check his appearances
Fun for Kids
Print and Color - Discover your world
Help for Parents
There is a world of seizure and epilepsy information on the Internet - We've some helpful references listed here
Joey Lora Fund for Children
The "Joey Lora Fund" money goes to benefit the areas of the hospital that are responsible for Joey's success and the future successes of other children like him.
Home Page
Special Links here for Joey's Song / Joey's Poem / Washington Post Article on Joey
Joey's Guestbook
Please be sure to sign Joey's Guestbook!! 
 
Photo:  Joey and Mom just 'sliding' :)
 

Joey and Mom Enjoying the Playground

 
 
 

 

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